May
30
2009
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First FDA-Approved Pancrelipase Product May Mark New Era for Providers, Patients

FDA’s recent approval of a reformulated version of Solvay Pharmaceutical Inc.’s delayed-release pancrelipase product, Creon, gives pharmacists who are active in the cystic fibrosis community something newa ‘a pancreatic enzyme product that has passed regulatory muster.


Written by Fibrosis News in: Cystic Fibrosis | Tags: ,

May
29
2009
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Vertex Initiates Phase 3 Registration Program For VX-770, An Oral CFTR Potentiator Targeting The Defective Protein Responsible For Cystic Fibrosis

Cystic Fibrosis News From Medical News Today

Vertex Pharmaceuticals Incorporated (Nasdaq: VRTX) today announced the initiation of a Phase 3 registration program for VX-770, an investigational Cystic Fibrosis Transmembrane Conductance Regulator (CFTR) potentiator that targets the defective CFTR protein that causes cystic fibrosis (CF).
Written by Cystic Fibrosis News From Medical News Today in: Cystic Fibrosis |

May
29
2009
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Manheim Twp. teachers shave heads for fundraise…

“Sheer generosity” – and a lot of sheared hair – highlighted “Operation Baldy” on Tuesday at Manheim Township High School.


Written by Fibrosis News in: Cystic Fibrosis | Tags: ,

May
28
2009
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Great Strides Walk at RRU

For most people, walking three kilometres isn’t a monumental challenge, but for a child with cystic fibrosis it’s a different story.


Written by Fibrosis News in: Cystic Fibrosis | Tags: ,

May
27
2009
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Vertex Pharmaceuticals Initiates Phase 3 Registration Program for…

The VX-770 registration program will consist of three clinical trials, including a primary 48-week Phase 3 trial that is currently open to enrollment of patients aged 12 years and older who carry the G551D mutation on at least one allele.


Written by Fibrosis News in: Cystic Fibrosis | Tags: ,

May
27
2009
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Fox Chase Researchers First To Determine Structure In A Class Of Self-Regulating Proteins

Cystic Fibrosis News From Medical News Today

Sections of proteins previously thought to be disordered may in fact have an unexpected biological role - providing certain proteins room to move - according to a study published by researchers at Fox Chase Cancer Center in this month's issue of the journal Structure (Cell Press).
Written by Cystic Fibrosis News From Medical News Today in: Biology / Biochemistry |

May
26
2009
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Play to benefit Cystic Fibrosis Foundation, Simi girl

Photo courtesy of Rachel Hoolihan Kyra Hoolihan will be the guest speaker on opening night of “John Lennon and Me,” about a girl with cystic fibrosis.


Written by Fibrosis News in: Cystic Fibrosis | Tags: ,

May
26
2009
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Make CF mean 'Cure Found'

They’ll be joining together on Sunday yet again to bring attention to and to raise money for a cause they all believe in.


Written by Fibrosis News in: Cystic Fibrosis | Tags: ,

May
26
2009
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American Chopper helps fundraise

Alberta Cycle Motorsports and Orange County Choppers team up to raise money for cystic fibrosis research Posted 2 hours ago A 10 minute drive out of Sherwood Park, Alberta Cycle Motorsports will be hosting multiple fundraisers on May 30, between June 5 and 7 and again on June 20 for the Canadian Cystic Fibrosis Foundation.


Written by Fibrosis News in: Cystic Fibrosis | Tags: ,

May
25
2009
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Great Strides set for Sunday, May 31

Join Sylvana Denroche and the Campbell River Chapter of the Canadian Cystic Fibrosis Foundation at the annual Great Strides walk on Sunday, May 31 and help fight cystic fibrosis.


Written by Fibrosis News in: Cystic Fibrosis | Tags: ,

May
24
2009
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Families have fun to fight disease

Tyrese Patterson, 10, climbed into a bumper car and took off, slamming into other cars in the track at Krazy City in the Poughkeepsie Galleria.


Written by Fibrosis News in: Cystic Fibrosis | Tags: ,

May
23
2009
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Growing towards a cure

Melanie Riedel surveyed her front lawn Friday with its hundreds of colourful annuals in hanging and potted planters.


Written by Fibrosis News in: Cystic Fibrosis | Tags: ,

May
21
2009
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Taking a deep breath

“There’s no point in focusing on the negative,” says Alison Wilson, recent double lung transplant recipient.


Written by Fibrosis News in: Cystic Fibrosis | Tags: ,

May
20
2009
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Tobramycin Inhalation Powder (TIP) Improved Lung Function In Cystic Fibrosis (CF) Patients With Respiratory Pseudomonas Aeruginosa (Pa) Infection

Cystic Fibrosis News From Medical News Today

In a Phase III study, TIP, an inhaled investigational formulation of tobramycin, improved lung function (as measured by FEV1) in cystic fibrosis patients with Pseudomonas aeruginosa (Pa) infection, compared to placebo.
Written by Cystic Fibrosis News From Medical News Today in: Cystic Fibrosis |

May
19
2009
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Superstrider Sylvana walks for a cure for CF

Join Sylvana Denroche and the Campbell River Chapter of the Canadian Cystic Fibrosis Foundation at the annual Great Strides walk on Sunday, May 31 and help fight cystic fibrosis.


Written by Fibrosis News in: Cystic Fibrosis | Tags: ,

May
18
2009
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a Great Stridesa brings in $54,271 for cystic fibrosis research

Area families affected by cystic fibrosis took “Great Strides” Sunday afternoon, raising a record $54,271 in their endeavor to find a cure.


Written by Fibrosis News in: Cystic Fibrosis | Tags: ,

May
18
2009
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Sodium Channel Blocker Shows Promise As A Potential Treatment For Cystic Fibrosis

Cystic Fibrosis News From Medical News Today

Cystic fibrosis patients may benefit from a new therapy that increases airway hydration, preventing the buildup of mucous, which is a key factor in the disease, according to researchers at Parion Sciences in Durham, N.C. The research was presented on Sunday, May 17, during the American Thoracic Society's 105th International Conference in San Diego.
Written by Cystic Fibrosis News From Medical News Today in: Cystic Fibrosis |

May
17
2009
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Cystic Fibrosis Foundation plans Great Strides Walk

It’s a war against disease, fought by mothers and small biotech companies. But one by one, they’re making huge steps.


Written by Fibrosis News in: Cystic Fibrosis | Tags: ,

May
16
2009
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Walking for a cause

Tamara Finch hears there could be a cure for cystic fibrosis in 10 years. Her twin granddaughters who suffer from the disease will be 14.


Written by Fibrosis News in: Cystic Fibrosis | Tags: ,

May
16
2009
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Understanding Pancreatic Enzyme Products

Published Online: December 1, 2008 – 12:00:00 AM Pancreatic exocrine insufficiency is the inability of the exocrine pancreas to produce or secrete the enzymes necessary for digestion, which results in the malabsorption of nutrients and malnutrition.1 Pancreatic exocrine insufficiency is prevalent in conditions such as cystic fibrosis, chronic …


Written by Fibrosis News in: Cystic Fibrosis | Tags: ,

May
15
2009
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County set for its first Great Strides Walk for cystic fibrosis cure

Jackson County’s first Great Strides Walk will take steps to cure cystic fibrosis this Saturday.


Written by Fibrosis News in: Cystic Fibrosis | Tags: ,

May
14
2009
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Photo: Mom seeks cure for child's cruel affliction

Kate Beaupre got up to speed pretty quick. Since her 2-year-old daughter, Ella Salloom, was diagnosed with cystic fibrosis nine days after she was born, the single mom from Easthampton has been unrelenting in her quest for knowledge, and a fiery advocate for her daughter’s well-being. “It was a day filled with information,” said Beaupre of her …


Written by Fibrosis News in: Cystic Fibrosis | Tags: ,

May
14
2009
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Dr. Young is med society VP

* A stroke awareness event will be held 9 a.m. to 2 p.m. today in the St. Vincent Hospital Atrium, 123 Summer St., Worcester.


Written by Fibrosis News in: Cystic Fibrosis | Tags: ,

May
14
2009
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Benefit poker run set

An expected 300 bikers will “get their motors running” this Saturday in Lake Park for a ride to benefit the Georgia Chapter of the Cystic Fibrosis Foundation.


Written by Fibrosis News in: Cystic Fibrosis | Tags: ,

May
13
2009
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Researcher Strives To Give Kids A Say In Their Health Treatment

Cystic Fibrosis News From Medical News Today

Current CIHR-funded research: Should children with chronic conditions such as cystic fibrosis and asthma have a right to participate in any medical decisions made about their treatment? Dr. Donna Koller, a professor at Ryerson University and adjunct scientist at SickKids in Toronto, believes so.
Written by Cystic Fibrosis News From Medical News Today in: Pediatrics / Children's Health |

May
13
2009
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Take great strides forward

Join the Campbell River Chapter of the Canadian Cystic Fibrosis Foundation at the annual Great Strides walk on Sunday, May 31 and help fight cystic fibrosis.


Written by Fibrosis News in: Cystic Fibrosis | Tags: ,

May
12
2009
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Vendor blender' benefits those affected by cystic fibrosis

More than a dozen home-based business vendors gathered at the Kellogg-Marsh Grange May 2 for the second annual “vendor blender” to benefit those affected by cystic fibrosis.


Written by Fibrosis News in: Cystic Fibrosis | Tags: ,

May
12
2009
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Cystic Fibrosis Foundation Launches Great Strides Walks Nationwide At 600 Locations

The Cystic Fibrosis Foundation announced the launch of GREAT STRIDES, a national walk that generates critical funds for life-saving cystic fibrosis research.


Written by Fibrosis News in: Cystic Fibrosis | Tags: ,

May
11
2009
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Post a comment

Brad , George and Glenys Tuttle. Glenys is still a little worried about her son living on his own, and now and then writes reminder notes to leave on his fridge.


Written by Fibrosis News in: Cystic Fibrosis | Tags: ,

May
10
2009
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Open invitation to Great Strides walk

Cape Bretoners are often asked to support a variety of worthy causes and fundraising initiatives.


Written by Fibrosis News in: Cystic Fibrosis | Tags: ,

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