Originally posted in Cystic Fibrosis News From Medical News Today

An article in Science magazine this month highlights several promising new CF therapies, including VX-770 and VX-809 developed by Vertex Pharmaceuticals, as part of a look back at key moments in CF research since the discovery of the CF gene 20 years ago. The article notes the CF Foundation’s role in scientific discoveries: “The CF Foundation had been instrumental in funding the gene hunt and subsequent CF research, raising and investing tens of millions of dollars.

Originally posted in Cystic Fibrosis News From Medical News Today

An article published Online First and in an upcoming edition of The Lancet reports the findings of the INSPIRE trial on treatment of idiopathic pulmonary fibrosis (IPF) with interferon gamma-1b (Ifn-g1b). It is written by Professor Talmadge E King Jr, of the University of California, San Francisco (UCSF), USA and his team. Results show no improvement in survival compared with placebo. There is no effective treatment for IPF which is a fatal disease.

Tuesday, 30 June 2009, 2:52 pm Press Release: PHARMAC Following is a media release from PHARMAC.

For a change, it did not rain Sunday on Dartmouth Building Supply’s annual poker run and pig roast that benefits cystic fibrosis.

Transave announced today that the award will be used to support an ongoing Phase II clinical trial in U.S. CF patients with Pseudomonas lung infections and a preclinical study.

BUFFALO, N.Y. Press release – The Cystic Fibrosis Center located in Women and Children’s Hospital of Buffalo, a University at Buffalo-affiliated teaching hospital, is the first site to begin recruiting patients for a 48-week international clinical trial of a promising investigational treatment for cystic fibrosis .

Buffalo’s Women & Children’s Hospital will be the site of the nation’s first clinical trial on a drug to treat cystic fibrosis.

Eurand’s Zenpep Delayed by FDA By: Grant Zeng, CFA 0 ) Share EURX: Zenpep Approval Delayed 3 Months, but Still a Buy Yesterday , Eurand N.V. announced that the US Food and Drug Administration advised the company that it has extended the June 2009 user fee goal date for the New Drug Application for Zenpep by three months.

Christine Falleti has spent much of her life combating the crippling effects of cystic fibrosis .

As 10-month-old Colin DePriest catches a cat nap in his car seat, he looks the picture of health.

No sign of rain for this yeara s charity car wash. Joe Paladino, assistant manager of Carstar Collision Centre, was helping wash some cars with volunteers for the Carstar Soaps it up fundraising event on Saturday.

On Thursday, two administrative personnel at University Hospitals pulled two pediatric nurse practitioners from patient care responsibilities to tell them that the hospital would no longer be funding their positions.

Dartmouth Building Supply’s Cystic Fibrosis Poker Run and Pig Roast is a perfect example of how nothing brings people together like a good time for a great cause.

With a pile of wet suds and some dirty cars, a collision repair shop hopes to set a Guinness World Record and help find a cure for cystic fibrosis.

Originally posted in Cystic Fibrosis News From Medical News Today

Luminex Corporation (NASDAQ: LMNX), the worldwide leader in multiplexed solutions, today announced that it has launched two new cystic fibrosis (CF) tests in Europe, the xTAG® Cystic Fibrosis 39 Kit v2 and xTAG® Cystic Fibrosis 71 Kit v2, as CE IVD Marked products under the European Directive on In Vitro Diagnostic Medical Devices.

New legislation introduced would allow patients with rare diseases to participate in clinical drug studies without losing their eligibility for government healthcare coverage.

Having been diagnosed with cystic fibrosis when he was less than a year old, 19-year-old Alex Colbert has lived for years with an awareness that life is fleeting.

About 150 people from across the state came to Laurel Saturday to help local Cystic Fibrosis Walk organizers surpass the $16,000 raised at last year’s event.

Approximately 30 residents, as well as associates, friends and family members, gathered in the dining room of Thomson Manor Health Care Center last Thursday morning for a kick-off celebration of the home’s second Cystic Fibrosis fundraiser.

Jennifer S. Altman, Peter DaSilva, Ann Johansson, Jeffrey Sauger and Brendan Smialowski for The New York Times.

EPG Health Media, specialists in e-communication solutions and digital publishing for the health sector, today announced the launch of a new interactive cystic fibrosis knowledge centre on www.epgonline.org, its web-based medical education resource for Healthcare Professionals .

What is cystic fibrosis? Cystic fibrosis is an inherited chronic disease. In CF, a defective gene affects how sodium moves in and out of cells, especially cells that line the lungs and pancreas.

Mary Jo Feldkamp and her son, Andrew, 15, practice defensive moves inside Saline ATA Martial Arts during a recent “break-a-thon” to benefit the Cystic Fibrosis Foundation.

Every day Brynn Nikirk takes pills and endures two sessions of physiotherapy to clear her lungs.