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Feb
27 2010
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U.S. Food And Drug Administration Approves Cayston(R) For The Improvement Of Respiratory Symptoms In Cystic Fibrosis Patients
Gilead Sciences, Inc. (Nasdaq:GILD) announced that the U.S. Food and Drug Administration (FDA) has granted marketing approval for Cayston(R)(aztreonam for inhalation solution) as a treatment to improve respiratory symptoms in cystic fibrosis (CF) patients with Pseudomonas aeruginosa (P. aeruginosa)...
Feb
25 2010
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Aradigm Doses First Patient In Its Second Phase 2b Clinical Trial Of Inhaled Liposomal Ciprofloxacin In Bronchiectasis Patients
Aradigm Corporation (OTCBB:ARDM) (the "Company") announced that it dosed the first patient in the U.S...
Feb
24 2010 FDA approves new drug for CFWe have a new antibiotic in the arsenal to help fight the life-threatening infections associated with cystic fibrosis. Yesterday, the FDA approved an important new inhaled antibiotic called Cayston® (aztreonam for inhalation solution) for the treatment of CF. The drug was made possible by significant support from the Cystic Fibrosis Foundation, including an early $1 million investment to help develop the therapy. Developed by Gilead Sciences, Inc., Cayston offers a much-needed antibiotic alternative for CF patients who battle recurrent lung infections and develop resistance to existing antibiotics. Cayston is administered with a new device called Altera that allows patients to take the medicine in less than five minutes, a fraction of the time required for other inhaled antibiotics. This shortened delivery time reduces the burden on patients, who – on average — have a treatment regimen of three to four hours per day. Cayston will be available by the end of next week. Patients interested in learning more about Cayston should consult their physicians. The approval of Cayston demonstrates that our drug development model, fueled by donors and volunteers like you, is working and making a real difference in the lives of people with cystic fibrosis. To help continue our progress in the fight against CF, please consider making a tax-deductible donation to the CF Foundation today.
Thank you for all you do. Sincerely, Robert J. Beall, Ph.D.
Feb
20 2010 Third Annual Cystic Fibrosis Country ConcertThird Annual Cystic Fibrosis Country ConcertPlease Save the Date for the 3rd Annual CF Concert & Motorcycle Ride on Sunday AUG 22,2010 at the American Legion Post 781 Grounds in Mountain Top,Pa (approx 1mile off of the Nuangola Exit on 81 or 3 miles from RT 309)… Concert Starting at 1pm.. General Admission to CONCERT only $5.00 Donation/Children under 12 FREE.. In addition to the GREAT BANDS, the Concert will also feature:
Beer,Soda & Water only $1.00…So much to do we can’t fit it on the page CONCERT WILL FEATURE an Up CLose and Personal Concert Sponsored by FROGGY 101.
 Kartune
 Crossfire  Tim Johnson Band  Jeanne Zano  Farmer's Daughter  Crystal Martinez  Big Carl & the Mudpond Boys …and more to be added in the next few weeks.MOTOR CYCLE RIDE INFO:$20 per person per RIDER..$10 per person for PASSBoth include a delicious PIG ROAST LUNCH at conclusion of ride at the American Legion MT Top… Sign-In starts at 9:30am -11:30 at the KMART parking lot on RT 309 WB.. Donuts, coffee and water provided by Dunkin Donuts WB/& Paiges Family… Ride leaves promptly from KMART parking lot at 11:30 with a 65 mile ride that will go 309 to 437 through Freeland and the Conyingham Valley and the ride concludes at the American Legion Post 781 where your lunch and a great day awaits you… First 200 to arrive at legion will also recieve Thank you bags… In case you missed it last year, here is Crystal Martinez’s performance:
Hope To See You There!
Feb
18 2010
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Cases Of Some Genetic Diseases Appear To Decline As Prenatal Testing, Embryonic Screenings Increase
As prenatal and embryonic genetic testing has become more widespread in the U.S., the number of infants with certain inheritable diseases -- such as cystic fibrosis, Tay-Sachs and familial dysautonomia -- has declined, according to an Associated Press review of research and interviews with genetics experts, the AP/Seattle Times reports...
Feb
17 2010
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Low-Cost DNA Test To Pinpoint Risk Of Inherited Diseases
An inexpensive, fast, accurate DNA test that reveals a person's risk of developing certain diseases is expected to become a reality, thanks to technology developed at the University of Edinburgh. Scientists have developed a method of pinpointing variations in a person's genetic code at critical points along the DNA chain. The technique could be used to analyse DNA in a drop of saliva...
Feb
15 2010
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Defective Signaling Pathway Sheds Light On Cystic Fibrosis
In a study that could lead to new therapeutic targets for patients with the cystic fibrosis, a research team from the University of California, San Diego School of Medicine has identified a defective signaling pathway that contributes to disease severity...
Feb
12 2010 Tell Congress to Keep Clinical Trials Bill on its AgendaAs you may know, last week we announced encouraging results from Vertex Pharmaceuticals Incorporated‘s Phase 2a trial of VX-809, one of the first investigational drugs aimed at treating the underlying causes of cystic fibrosis. Learn more about this exciting advancement.The remarkable progress of VX-809 is a reminder of why it is so important to remove barriers that prevent people with CF from participating in clinical trials. Passing the “Improving Access to Clinical Trials Act of 2009” will allow people with CF who are on public benefits to participate in important research without losing their health coverage. We continue to work with Congressional supporters to chart the best path forward for the bill. There are two options to pass the bill: Option #1: On its own Non-controversial, bi-partisan and no-cost legislation like the clinical trials bill may be considered under special procedural rules. Thanks to your hard work, 110 members of the House, and eight members of the Senate have signed on as co-sponsors, meeting the requirements to provide the bill the opportunity to advance on its own. Option #2: As part of a health care reform bill Despite the shift away from health reform in past weeks, our sponsors – several of whom are key negotiators on health reform – continue to consider it as an option and the best opportunity to move the bill sooner rather than later. Read more about what H.R. 2866 would do.
What You Can Do Today The bill has two viable opportunities because you made it clear to your members of Congress that this is a priority for you and should be for them as well. Looking to do more to help fight CF? Sign up for a GREAT STRIDES walk!This spring, take steps to cure cystic fibrosis by signing up for a GREAT STRIDES walk. Join tens of thousands of co-workers, friends and family come together each year as one community for one cause…to help find a cure for CF. In 2009, nearly $35 million was raised to support vital CF programs. Register online today! Thank you for your support! Mary B. Dwight MAKE AN IMPACT ON CF
GET INVOLVED INSPIRE ACTION ————————-
Feb
08 2010
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Cystic Fibrosis Foundation Receives $521,000 From BJ's Restaurants, Inc., As Part Of Long-Term Commitment To Fight Life-Threatening Disease
As part of a steadfast commitment to finding a cure for cystic fibrosis, BJ's Restaurants, Inc. donated $521,000 to the Cystic Fibrosis Foundation in 2009 for research, care and education programs. BJ's has been involved with the Foundation since 1998 and is one of its largest and most loyal corporate supporters...
Feb
06 2010
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www.DrunkenCrayfish.com
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