Originally posted in Cystic Fibrosis News From Medical News Today

An emerging population of middle-aged cystic fibrosis patients contains significantly more females and includes a large proportion of patients who lived for decades without a diagnosis or specialized care, according to research published by researchers at National Jewish Health…

Originally posted in Cystic Fibrosis News From Medical News Today

Mpex Pharmaceuticals, Inc. announced the presentation of data from its Phase 2b clinical trial with Aeroquin™ (a proprietary aerosol formulation of levofloxacin, MP-376) in cystic fibrosis (CF) at the American Thoracic Society (ATS) Annual Meeting in New Orleans…

Originally posted in Cystic Fibrosis News From Medical News Today

Gregory Downey, MD, received the 2010 Recognition Award for Scientific Accomplishments at the American Thoracic Society’s (ATS) International Conference on Monday, May 17. Dr. Downey, Executive Vice President of Academic Affairs and Professor of Medicine, Pediatrics and Immunology at National Jewish Health, has over 190 publications to his credit…

Urge Your Senators to Pass the “Improving Access to Clinical Trials Act” Thanks to your hard work, the Improving Access to Clinical Trials Act now has more than 120 cosponsors in the House of Representatives! Your efforts have gotten us one step closer to helping new therapies for CF and other diseases move swiftly from the research stage into the hands of patients who need them.

However, we’re not done yet. Only 10 Senators have signed on to support this bipartisan bill, and we’re going to need a lot more to push the Improving Access to Clinical Trials Act across the finish line.

It’s up to you to ensure that both of your Senators are on board! Your efforts to get support for this bill in the Senate are more critical than ever.

Help ensure the bill passes in the Senate by:

1. Emailing your Senators and asking them to cosponsor and support the bill’s passage in the Senate.
2. Taking the additional step of calling your Senators to ask for their support.

Urge your Senators to add their names in support of the clinical trials bill and to pass it in 2010!

Thank you for your support!

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Originally posted in Cystic Fibrosis News From Medical News Today

Aradigm Corporation (OTCBB:ARDM) (the “Company”) announced it received clearance from the U.S. Food and Drug Administration (FDA) for its inhaled liposomal ciprofloxacin Investigational New Drug (IND) application…

Originally posted in Cystic Fibrosis News From Medical News Today

Thousands of cyclists will take to the streets this summer and fall as the Cystic Fibrosis Foundation launches a new cycling tour in 18 cities across the country to support research to find new therapies and a cure for cystic fibrosis. The tour series, known as ZENPEP® CF Cycle for Life begins in San Francisco on June 26. The event’s title sponsor is Eurand N.V…

Making “Great Strides” in Conquering Cystic Fibrosis

WILKES-BARRE, LUZERNE COUNTY – Kirby Park was filled with walkers of all ages on Saturday.

They were there with one purpose in mind — to help conquer Cystic Fibrosis. It’s a life-shortening disease that strikes 30,000 children and adults — a disease that causes great difficulties with a person’s respiratory and digestive systems. “People with cystic fibrosis in order to live a healthy life face challenges every day… treatments to clear their lungs, enzymes before they eat,” said Linda Capozello.

She is Executive Director of the Cystic Fibrosis Foundation’s Northeastern Pennsylvania Chapter. She helped organize this Great Strides walk — a fund-raiser that’s drawn about twice as many walkers as last year. “Certainly when you have a childhood illness, people do come around and are very generous and kind and supportive,” said Capozellol. Many people decided to form teams for people they know who are stricken with cystic fibrosis. Crestwood 7th Grader Bethanie Jones formed Team Macho Brothers. She rounded up some friends to walk on behalf of her two cousins who both have cystic fibrosis. “I feel bad because they don’t really have a big life span and, like, I want them to survive as long as they can,” said the Luzerne County girl. “I want them to be normal and not have to worry about it when they get older.”

Getting older wasn’t much of an option for children with cystic fibrosis a half-century ago. Few lived long enough to enter grade school. But, today, many make it into adulthood. “The average life expectancy is now 37 years of age,” said Capozello. “But we’re making wonderful strides and we’re pushing that back literally by years.”

Giving people with cystic fibrosis — and their families — reason to keep trying to find a cure — one step at a time. The goal was to raise $35,000 at the Great Strides walk. All of the money raised goes toward research and treatment of cystic fibrosis.

Originally posted in Journal of Cystic Fibrosis

The Journal of Cystic Fibrosis is the official Journal of the European Cystic Fibrosis Society (ECFS). The ECFS is a professional organisation and has members that form a wide range of disciplines including scientists, physicians, nurses and allied health professionals. The mission of ECFS is to facilitate the acquisition and sharing of knowledge and the improvement of patient care in all aspects of CF. An important instrument for this mission is the Journal. After nearly a decade, the Journal is now a well established source of valuable scientific and clinical information for individuals all over the world, interested in this hereditary disease. Cystic Fibrosis is a very complex disease which is mirrored by the high diversity of topics which are covered in the Journal (). Articles are published online and in the six yearly issues of the Journal or supplements.