Originally posted in Cystic Fibrosis - Adults

My daughter is coughing, productive(but she swallows it) &nbsp;and was started on oral Duricef. &nbsp;She has taken this before without it bothering her stomach or making her throw up. &nbsp; &nbsp;She threw up about 1 1/2 hours after taking the first dose. &nbsp;Pharmacist thought she likely absorbed the med before throwing up. &nbsp;Now I am afraid the next time she takes it she'll throw up again.<div><br></div><div>Thought it could also be from her swallowing the mucus she is coughing up. &nbsp;She is 9 and stubborn. &nbsp;What food item would help her keep the antibiotic down? &nbsp;Suggestions?? &nbsp;I was thinking of ginger ale and saltines. She feels alot better after throwing up. &nbsp;Is this your body's way of helping get rid of mucus? &nbsp;</div>

Originally posted in Cystic Fibrosis - Adults

<BR>After 2.5 hours of trying every vein in both of my arms, the IV team at my hospital has stated that they are unable to place a PICC line in me.&nbsp; It looks like I will be getting a port.&nbsp; Please tell me about your experience getting one, how it feels/looks afterwards and upkeep.&nbsp; Thanks!

Originally posted in Cystic Fibrosis - Adults

<BR>Well, I did it.&nbsp; I just submitted my disability request to my employer.&nbsp; I am praying that God makes everything go smoothly.&nbsp; It is really hard not to be nervous when my whole life is changing.

Originally posted in Cystic Fibrosis - Adults

I feel so Blessed to have reached this milestone ..&nbsp;<div><br></div><div>&nbsp;I have an amazing supportive family & great friends.. &nbsp;My Dad & I were fortunate to share our Dec 27th. Birthday together & it always felt special to me. &nbsp;Happy Birthday in Heaven Daddy <img src="i/expressions/face-icon-small-smile.gif" border="0"> &nbsp;I miss & love you ..<div><br></div><div>&nbsp;CF.com & the CF community has been a tremendous support as well & I have come to know many of you personally & am so grateful for our friendships .. &nbsp;<div><br></div><div>&nbsp;I pray that some day all CFers will live way into their 60's & beyond ! &nbsp;<div><br></div><div>&nbsp;God Bless &lt;3 &nbsp;joni</div></div></div></div>

Originally posted in Cystic Fibrosis - Adults

Hi<br>We're fairly new to nebulised antibios, our daughter having done only one 6 month session with Gentamiacin. We read somewhere that nebulisers should be replaced from time to time – we even read somewhere that the whole machine should be replaced after each course (ie. in this case, 6 months). I know many of you have lots more experience than we do here – can you possibly advise??<br>Thanks!<br>

Originally posted in Cystic Fibrosis - Adults

<BR>My daughter recently cultured MRSA.&nbsp; She had been sick more on than off for a few months.&nbsp; They have given her Septr-D for 3 weeks in hopes of making her feel better.&nbsp; They said she might not get rid of it.&nbsp; Anyone with this experience?&nbsp; Would you share the treatment and results?&nbsp;

Originally posted in Fibrosis News

CHEERFUL CHILDREN: From left, Michael Ryan, 10, Shannon McCamish, 11, Meaghan McCamish, 8, Carina Cardi, 7, and Olivia Cardi, 10, enjoy Christmas caroling.

Originally posted in Cystic Fibrosis - Adults

<P><BR>Joni could use our thoughts & prayers.&nbsp; She is hospitalized with a small bowel obstruction.&nbsp; </P>
<P>&nbsp;</P>
<P>Praying for relief for you, and that you can be home with your family soon.&nbsp; Love you!</P>
<P>&nbsp;</P>
<P>Stacey</P>

Originally posted in Cystic Fibrosis - Adults

Anyone ever have this?<br>I'm wondering if my PICC could be laying on a nerve or something. To be clear, I don't have any pain at the site, or swelling, or hotness, or fever. So its not an infection. <br>From day one, I'm getting this pain running from the back of my elbow area all the way to my fingers, occasionally I'll feel it on my upper arm too but I notice it more in my lower arm.<br>It hurts! And its driving me nuts. <br>I dont know if its a nerve or what, or just me being more sore from holding the baby alot.<br>

Originally posted in Cystic Fibrosis - Adults

Joni turned 60 on the 27th, come celebrate with us in chat!<br>

Originally posted in Cystic Fibrosis - Adults

What does this mean…i ate a plate full of nachos with cheese avacado spicy pork and then ate some chocolate sticks :-/ shouldnt it be higher?&nbsp;

Originally posted in Fibrosis News

Vanessa Sue Chasteen, 24, of Liberty, MO, joined her Lord in Heaven on December 18, 2011 following complications from cystic fibrosis.

Originally posted in Cystic Fibrosis - Adults

<BR>My doctor said it could be gall stones, but maybe not since I haven't had any pain…&nbsp; Anyone else have high billirubin for another reason?

Originally posted in Cystic Fibrosis - Adults

<P><BR>For Christmas yesterday, I got a set of wireless headphones that connect to the TV. Now I can actually hear the TV while I do my&nbsp;Vest treatment without having to blast the volume on the TV. Nor do I have to use the closed-caption feature on the TV. Although I did get used to reading and watching at the same time.</P>
<P>Mark, age 43.</P>

Originally posted in Cystic Fibrosis - Adults

<BR>Has anyone ever heard of getting a chemical burn under your picc line dressing after a dressing change? I'm talking full on blisters.

Originally posted in Cystic Fibrosis - Adults

Hi everyone!!! oh i been gone for so long !!! HOW IS EVERYONE DOING???????&nbsp;

Originally posted in Cystic Fibrosis - Adults

I have been noticing my teeth are getting more disgusting as time goes on. I used to have&nbsp;relatively&nbsp;white pearly teeth. AND now, they're all yellowish and murky looking. I've been getting more white spots too. I also notice that no matter how much I brush and brush and floss I can <i>still &nbsp;</i>see a film over my teeth! ugh. Also, my&nbsp;tongue&nbsp;can never be brushed clean (even after mouth washing it's still have a residue over it). Anyone else have this problem? Is it from coughing mucus up into my mouth all day long?&nbsp;<div><br></div><div>I do inhaled tobi, pulmo. cayston, saline. the usual. Along with advair and albuterol (inhalers not nebbed).&nbsp;</div><div><br></div><div>I'm also on some strong antibiotics. Minocyline and Zyvox.&nbsp;</div><div><br></div><div>Are there certain meds that tend to destroy/yellow our teeth? Does coughing up mucus wear out the enamel? Anyone have any ideas on this?&nbsp;</div><div><br></div><div>I'd really like to start whitening my teeth but I don't want to wear out my enamel if it's already being thinned by my meds! I'd rather have yellow teeth over cavities.&nbsp;</div><div><br></div><div>I just moved to Baltimore so I don't have a dentist lined up yet. So in the meantime I figured it couldn't hurt to ask around the forum and see if anybody has any healthy teeth tips.&nbsp;</div><div><br></div><div><br></div><div>*I do everything that I'm supposed to for my teeth. Brush, floss, mouthwash etc.*&nbsp;</div>

Originally posted in Cystic Fibrosis Foundation

Originally posted in Cystic Fibrosis Foundation

Originally posted in Cystic Fibrosis - Adults

<P><BR>Hi Breathfree:</P>
<P>when will you post the intensive chest physio on you tube?</P>
<P>because of frequent Hemoptysis, Im scared to do anything too intense, so do more wimpy CPT….</P>
<P>Please post it as soon as you can…!!!</P>
<P>&nbsp;</P>
<P>Thanks</P>

Originally posted in Cystic Fibrosis - Adults

Hi All ,&nbsp;<div><br></div><div>&nbsp;I posted on fb earlier this month about a chat for my b'day.. &nbsp;It will take place tonight about 9 pm &nbsp;EST &nbsp;(i will try to get there by 8 but not sure if i can make it that early) &nbsp;I hope you all can make it !! &nbsp;&nbsp;</div><div><br></div><div><img src="i/expressions/face-icon-small-smile.gif" border="0"> &nbsp;joni</div>

Originally posted in Cystic Fibrosis - Adults

Long story, read to end for actual point <img src="i/expressions/face-icon-small-wink.gif" border="0">.&nbsp;&nbsp; <br><br>One month ago I switched CF clinics.&nbsp; At my first visit to the new clinic I cultured Pseudomonas (PA).&nbsp; At that time I thought I had only cultured it once in 2006, and had never been treated for PA via Tobi/Cipro or anything like that.&nbsp;&nbsp; I have however been doing treatments for Mycobacterium (MAC) on and off since about 2008-2009 (long story).&nbsp; Two days ago I found out, by nagging my old clinic for records and scrutinizing everything, that I actually cultured PA there too in 2007 but they never informed me of this or treated me….&nbsp; <br><br>Flash forward to yesterday, one month after culturing PA and beginning Tobi/Cipro… My lung function increased by more than 30% &nbsp; I had always been around 100%+ until roughly 2 years ago at the start of all this "MAC" crap.&nbsp;&nbsp; Prior to switching clinics I had NOT been nebulizing ANYTHING and my lung function steadily decreased for 2 years without my doctor doing anything.&nbsp; The reason I switched was because I finally wised up and decided that the clinic I was going to was just going to sit there and do nothing for me.&nbsp; I was 6 months into MAC treatment and NOT feeling any better…..&nbsp; At the first visit to my new clinic one month ago my FEV1 was the lowest it has ever been in my entire life at 72%… <span style="color: rgb(0, 0, 0);">YESTERDAY is was 108%!&nbsp; </span><br><br>I had always been wary of this "MAC" diagnosis and now I am even more unsure of whether treatment for it was the right decision.&nbsp; 6 months of treatment with no alleviation of symptoms and then one cycle of PA treatment and I feel great!!!&nbsp; The first time I did MAC medication for 6 months it also included a heavy dose of Cipro and I felt better, this time my medication does not include Cipro and wasn't feeling better at all.&nbsp; Cipro treats PA……<br><br>So I ask the new doctor about this yesterday and she said, "Yes first time cultures of MAC are typically treated for PA before we try to investigate the MAC further since the problem can be PA and MAC is so hard to eradicate and the medication is so hard for people to tolerate."&nbsp;&nbsp; <br><br>Finally, my point:&nbsp; Has anyone heard of this protocol to treat for PA upon culture of MAC?&nbsp; Has anyone cultured MAC but been treated for PA?&nbsp;&nbsp;&nbsp; Naturally I am fairly upset about this whole two year stint of feeling like ***** and having no one do anything productive for me.&nbsp; However, I am very curious about others experiences and also would like to inform people in case they culture MAC and want to be sure to ask these types of questions. <br><br><br>

Originally posted in Cystic Fibrosis - Adults

Thinking of getting a new compressor. Do you use it? Do you like it? How long does it take to do your meds? Can you use the Pari LC Plus nebs and tubing? Cost? Did insurance cover it? Any and all information would be great! Thanks!<br>

Originally posted in Cystic Fibrosis - Adults

<P>Hi:</P>
<P>Dont know if I missed a posting, but how are you doing? Are you home yet on IVs?</P>
<P>and is your lung function going back up?</P>
<P>I was sorry to see you were in hospital, your one of the healthiest people here. </P>
<P>Hope things are improving, and your home for xmas.</P>
<P>liz<BR></P>

Originally posted in Fibrosis News

If you’re ever walking the halls at Dartmouth-Hitchcock Medical Center, there is a good chance you could have some company.

Originally posted in Cystic Fibrosis - Adults

Hi All,<div><br></div><div>This has probably been discussed quite a bit already but I would like to know other people's experiences with their breathing treatments. &nbsp; What types do you do, how do you do them, what order, are any mixable, etc? &nbsp; How do people feel when they skip a day of treatment? &nbsp;What breathing treatments are your favorites/must haves, etc? &nbsp;&nbsp;</div><div><br></div><div>I have only been doing breathing treatmentd for a month and I find that I have to nebulize albuterol or else I feel like I cant breath.&nbsp; The albuterol makes my hands a bit shakey for about half an hour afterward.&nbsp;The rest of them I am fairly&nbsp;ambivalent&nbsp;about. &nbsp; Pulmozyme seems like it does nothing. &nbsp;Hypertonic saline is interesting and I like the salt taste. &nbsp;lol &nbsp; I just got the vest and it is quite the scary contraption.</div><div><br></div><div>What are your experiences??? &nbsp;&nbsp;</div>

Originally posted in Fibrosis News

“I was 44 years old when he was diagnosed,” says Christian musician-pastor Christa Shore of her husband, Mike, stricken with idiopathic pulmonary fibrosis in 2005.

Originally posted in Cystic Fibrosis - Adults

<div style="color: rgb(34, 34, 34); font-family: verdana, tahoma, arial, helvetica, sans-serif; font-size: 10px; text-align: left; ">Hi guys!</div><div style="color: rgb(34, 34, 34); font-family: verdana, tahoma, arial, helvetica, sans-serif; font-size: 10px; text-align: left; "><br></div><div style="color: rgb(34, 34, 34); font-family: verdana, tahoma, arial, helvetica, sans-serif; font-size: 10px; text-align: left; ">I'm not sure who will be reading this on Christmas Eve, but I'm hoping someone will! &nbsp;My 5 year old nephew has croup – which apparently is viral. &nbsp;We are supposed to go to Christmas at my sister-in-law's house, and I'm not sure if I should go… does anyone have experience with this???</div><div style="color: rgb(34, 34, 34); font-family: verdana, tahoma, arial, helvetica, sans-serif; font-size: 10px; text-align: left; "><br></div><div style="color: rgb(34, 34, 34); font-family: verdana, tahoma, arial, helvetica, sans-serif; font-size: 10px; text-align: left; ">Would you go? &nbsp;Or make alternate plans??</div><div style="color: rgb(34, 34, 34); font-family: verdana, tahoma, arial, helvetica, sans-serif; font-size: 10px; text-align: left; "><br></div><div style="color: rgb(34, 34, 34); font-family: verdana, tahoma, arial, helvetica, sans-serif; font-size: 10px; text-align: left; ">Thanks & Happy Holidays!!</div><div style="color: rgb(34, 34, 34); font-family: verdana, tahoma, arial, helvetica, sans-serif; font-size: 10px; text-align: left; "><br></div><div style="color: rgb(34, 34, 34); font-family: verdana, tahoma, arial, helvetica, sans-serif; font-size: 10px; text-align: left; ">Kris</div>

Originally posted in Cystic Fibrosis - Adults

<BR>I am just feeling lonely and sad.&nbsp; I have been married about a year and he is really struggling with the stresses of having a sick wife and step-children.&nbsp; I have moved in with my parents who are always there for me.&nbsp; I love him, but he needs to accept me like I am.&nbsp; Even though I tried to explain it to him and prepare him, I was afraid no one could really handle this except for those of us who have no choice.&nbsp; I am getting more rest and having less stress from having to pretend that I can do all the things he thought I could.&nbsp; (I was doing really well while we dated, but had a major setback about a month after we got married.) But, I miss him.&nbsp; It is hard to be angry because this is a difficult life, but I am very sad.&nbsp; How do you move on from here?

Originally posted in Cystic Fibrosis - Adults

<br>MERRY CHRISTMAS!!! I HOPE IT IS GOOD TO YOU ALL AND SANTA BRINGS YOU WHAT YOU WANTED <img src="i/expressions/face-icon-small-wink.gif" border="0"> I WISH YOU ALL A BLESSED DAY AND GOOD HEALTH!