Originally posted in Cystic Fibrosis - Adults

<p><br>My son has A typical cf we do neb treatments, vest, enzymes etc. He is 3 yrs old hospitalized 5 times for respitory infections and testing postive for different bacterias. The last year and a half he has had a fever everyday not always high somewhere between 99.7 and 100.5. He acts sick gets glassy eyes flushed in the face and fussy. In July the dr told us when he got "sick" the next time she would put him in the hospital do a bronc and see want his lungs look like. We are now going through his third sickness since than no hospital stays she keeps putting him on oral antibotics that are not working. In Oct. he tested postive for staph he was on bactrium for 3 weeks, when we went back he was still testing a plus 3 for staph she put him on cipro for 10 days and didn't retest. We are do for an appointment Dec. 28. He started with a cough and running nose ( which is thick and green like always) on Sat. I called yesterday because he isn't getting better. When the nurse called back the dr is putting him back on bactrim for 14 days. I am supposed to call tomorrow morning to let them know how he is. Sorry for the long post.</p><p>My question is do I start him on medicine that didn't work 2 months ago ? I really don'tsee the point how can I get the dr to listen my husband and I. We are so fustrated. We have seen first how bad cf can be and we don't want that for our son. And his fevers can go as high as 104.5</p>

Originally posted in Cystic Fibrosis - Adults

Happy Wednesday!!<br><br>I am curious how many of you have a handicap/disability parking pass?<br><br>I am interested because during the winter months it is hard for me to walk from a building to my car without coughing to the point of vomiting.&nbsp; I am not disabled, but it is hard for me to function during winter months i.e getting groceries, shopping, etc.&nbsp; <br><br>Thank you,<br>

Originally posted in Cystic Fibrosis - Adults

<BR>Recently, my CF doctor has requested that all his patients stand during spirometry.&nbsp; Is there a difference in FEV1 between sitting and standing?&nbsp; Is standing the new norm?&nbsp; What does your doc ask you to do?

Originally posted in Cystic Fibrosis - Adults

Ok, first, sorry if this has already been done; I searched the forum with different keywords, and found a few posts on the general time-of-month stuff, but nothing really fit my question.&nbsp;<div><br></div><div>I'm nearly 21, w/CF. It's pretty mild (PFTs are in the 120s/110s usually, and I haven't been admitted in over 3 years). I'm also on a progesterone birth control. I can't take the estrogen ones because I am prone to migraines with auras, and estrogen can increase the chance of stroke or increase the instance of migraines.&nbsp;</div><div><br></div><div>Anyway, ever since I can remember, I have never had a "regular" period schedule. I can have two in a month, or skip a month; it varies big time. I originally tried the estrogen b.c. to see if that would help but, because of the migraines, couldn't stay on it long enough to find out. The progesterone b.c. haven't had any effect on them.&nbsp;</div><div><br></div><div>I was just wondering if others with CF have this issue? If you do, have you found anyways to get it on a schedule? It would just be nice to know when to expect it, you know?&nbsp;</div><div><br></div><div><br></div>

Originally posted in Cystic Fibrosis Foundation

Originally posted in Cystic Fibrosis Foundation

Originally posted in Cystic Fibrosis - Adults

<P><BR>Hi, I'm on my 1 hr. drive to on my&nbsp;way to catch the 3 hr train ride to Philadelphia to check in for my Vertex 770 trial. I've forgotten my Cayston. I need&nbsp;3-4 doses (so 3 vials medication&nbsp;and 3 ampules saline) to get me through until I return home tomorrow afternoon. </P>
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<P>Can you help a girl who's helping advance drug development out in this pinch? We can meet at the trainstation, at my hotel or I can take you out for dinner. </P>
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<P>Only serious candidates send me a PM with your cell phone and I'll call you back. </P>
<P>I really, really need the medicine as I am borderline needing to go on IVs – shouldn't be traveling but here I am in the name of drug development I'm doing it so we can get new medications. Please if you can possibly help please PM me. I'll check it on the train. </P>
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<P>Thanks!</P>
<P>Lauren</P>

Originally posted in Fibrosis News

Large-cap biotech firms start acting like Big Pharma — choosing to buy growth instead of seeking it from internal drug development.

Originally posted in Cystic Fibrosis News From Medical News Today

Adding inhaled dry powder mannitol to standard therapy for cystic fibrosis produced sustained improvement in lung function for up to 52 weeks, according to a new study. Along with the treatment’s efficacy and good safety profile, the convenience and ease of administration of mannitol treatment may improve adherence with therapy in these patients…