Jan
18
2012
0

do you ever get better on your own?

Originally posted in Cystic Fibrosis - Adults

<p>So..for the past few months I've been sick. My baseline FEV1 is usually 95, and went down to 72. So I was in the hospital for 2 weeks, with IV antibiotics for 1 week back in mid November…and my FEV went up only to 77!!! I was so frusterated…so were my doctors, so they did a bronchoscopy to check for bugs they weren't treating. At the time of the bronch, my Dr said they wanted to admit me (again) right away. I said no.</p>
<p>Well, I went to the clinic again today, and my fev is no better. They want me to go into the hospital again for three weeks. Well..i'm torn. It would be a Huge inconvenience right now..I'm a senior in high school, busy with college visits, exams and whatnot..and to have this setback again after it didn't help too much last time is just something I don't know what to do with. As of this moment, I told them I will stay on oral antibiotics, and they tried very hard to persuade me to go to the hospital, because my CT scans shows bad results, and the bronch also revealed a lot of secretions, and pus. I know this is bad. I do. But I feel like this is my new baseline, and I want to try to heal on my own for a while longer…I know I'm risking getting worse, and I think I will end up probably going to the hospital in a month or so. &nbsp;But my question is, have you ever experiened something like this? Did you refuse to go to the hospital, and did it pay off or do you regret it? Thanks for your input.</p>

Written by sasha in: Uncategorized |

Jan
18
2012
0

Becca23′s Transplant

Originally posted in Cystic Fibrosis - Adults

<p>I just wanted to forward it on that Becky received her lungs in October and she got her broch done late last week and there are no signs of rejection so she gets to come home on Thursday 1/19/12. I am so happy for her and her family and for their success with this transplant. Just thought I would share the great news.</p>

Written by JennyCoulon in: Uncategorized |

Jan
18
2012
0

Wednesday Night Chat…

Originally posted in Cystic Fibrosis - Adults

<p>Tonight, &nbsp;8PM EST ! &nbsp;Hope you can make it &nbsp;<img src="i/expressions/face-icon-small-smile.gif" border="0"></p>

Written by beleache in: Uncategorized |

Jan
18
2012
0

Carlsbad boy with cystic fibrosis is finalist in America Inspired contest

Originally posted in Fibrosis News

Sean Young, a Carlsbad 13-year-old with cystic fibrosis, is among 25 finalists selected out of 900 nominations for a nationwide contest hosted by Examiner.com called “America Inspired,” which “celebrates extraordinary people making a difference across the United States.” He needs votes from the San Diego community to keep him in the lead.

Written by fibrosis news in: Uncategorized |

Jan
18
2012
0

researcher; tell me about your progression of therapy please?!

Originally posted in Cystic Fibrosis - Adults

<p>Hi all,</p>
<p>I am a biochemist and am researching therapies for CF. While I feel like I've found a lot out there about new and developing therapy, I'd love to know more from the patients. Primarily, could you tell me how your therapy has changed as you've gotten older? What kinds of inhaled or oral medications were you put on immediately at diagnosis, and how did that evolve to what you are on now? What is the schedule for these meds? What do you think you will be changing in the near future? Thanks ahead of time for any thoughts, and have a good day!</p>

Written by ab8 in: Uncategorized |

Jan
18
2012
0

Better Treatments For Systemic Fungal Infections May Result From Discovery Of Powerful Drug’s Surprising, Simple Method

Originally posted in Cystic Fibrosis News From Medical News Today

With one simple experiment, University of Illinois chemists have debunked a widely held misconception about an often-prescribed drug…

Written by Cystic Fibrosis News From Medical News Today in: Infectious Diseases / Bacteria / Viruses |

Bookmark Us!

©Uncle & Drunken Crayfish Productions 2011 www.DrunkenCrayfish.com DrunkenCrayfish

Visit our NEW site at PocketBiker.com
PocketBiker.com Logo

 

TheBuckmaker.com Wordpress Themes | Hosting Provider, Mixed-Tape Free Music