Originally posted in Cystic Fibrosis - Adults

Ok so i refused the insulin because i jus started diabetes education and when i went there we said we werent starting insulin just yet..also my cf doc said she didnt want to start that either..well this on call doctor thats covering for the weekend called it in..

I refused because i didn feel right and wanted to ask her first if it was necessary since it is only that crazy high cause of the prednisone..i have not been diagnosed as diabetic as of now an we have been just checking blood sugars an loggin 2hour after each meal as weve done the readings before meals and they were normal..so with that bein said did i do the right thing?..

I know ive heard that insulin actualy can do good and bring fev numbers up..but just didn want to start something in my body until i actualy talked to the doctor myself and get her opinion <img src="i/expressions/face-icon-small-smile.gif" border="0"> …whats yours ?

Originally posted in Cystic Fibrosis - Adults

<p>My 20 yr old daughter cultured VRE (vancomycin resistant enterococci) from her last sinus surgery. She has not had any vancomycin given to her. &nbsp;The clinic and ID docs are not concerned and do not recommend any treatment. They are not concerned about her transmitting it to a non-CFer. She will be put in iso rooms from now on while in the hospital. She has not had to do this previously. The docs are also not concerned that her SA (staph. aureus) and PA (pseudomonas aureginosa) will convert to vanc resistant. Those two orginisms are already multiple drug resistant.&nbsp;</p>
<p>I am concerned that because this is most likely hospital acquired, the clinic docs might have a conflict of interest in handling it. My research on the web indicates that this is a potentially serious complication. According to what I read, it can be transmitted to a non-CF person, who could then become a carrier. &nbsp;I also read that it can give the PA and SA vancomycin resistance.&nbsp;</p>
<p>I do not know who to contact for more info, since her docs are not concerned. &nbsp; Any suggestions???</p>

Originally posted in Cystic Fibrosis - Adults

<h1>New York City Half-Marathon 2012</h1>
<div class="subtitle team-boomer-events-subtitle">03/18/2012</div>
<p>For the second year in a row, the Boomer Esiason Foundation is proud to be among the New York Road Runners&rsquo; official charity partners for the&nbsp;<a href="http://www.nyrr.org/races/2012/nychalf/apply_2012.asp" target="_blank">2012 New York City Half-Marathon</a>.</p>
<p>The Foundation will provide guaranteed entries for the&nbsp;<a href="http://www.nyrr.org/races/2012/nychalf/apply_2012.asp" target="_blank">2012 New York City Half-Marathon</a>&nbsp;to 20 runners who pledge to raise funds for the Foundation. The runners who participate on behalf of BEF will receive fundraising guidance as well as pre-race and race day support.</p>
<hr />
<p><strong>APPLICATION AND FUNDRAISING INFORMATION</strong></p>
<p>A limited number of guaranteed entries are available for this event. To be considered for an entry, each athlete must commit to make a donation or raise funds totaling $1,500 or more to the Boomer Esiason Foundation.</p>
<p>BEF is 501(c)3 non-profit organization, and your tax-deductible donations help fund research for a cure for cystic fibrosis, as well as our&nbsp;<a href="http://esiason.org/thriving-with-cf/scholarships/exercise-for-life-athletic-scholarship.php">Exercise for Life Scholarship</a>&nbsp;to improve the quality of life for individuals with CF.</p>
<p><strong>Fundraising Commitment</strong></p>
<p>For this event, Team Boomer has guaranteed entries for 20 runners. To be considered for an entry, individuals must commit to make a donation or raise funds totaling $1,500 or more to the Boomer Esiason Foundation.</p>
<p>Your credit card information is required as a guarantee against the pledge. The Boomer Esiason Foundation reserves the right to charge the balance to the credit card we have on file if the minimum amount is not raised by 11:59 pm EST on March 12, 2012.</p>
<p><strong>Cancellation Policy</strong></p>
<p>Once you accept an entry into the New York City Half-Marathon from Team Boomer, you are subject to cancellation fees and/or fundraising commitments as follows:</p>
<ul>
<ul>
<li>A minimum of $1,500 must be raised and collected by BEF by March 12, 2012.</li>
</ul>
</ul>
<p>&nbsp;</p>
<ul>
<ul>
<li>A dedication deposit of $750 is due by February 28, 2012.</li>
</ul>
</ul>
<p>&nbsp;</p>
<ul>
<li>After February 28, 2012, you are responsible for the $1,500, even if you cancel for any reason, including injury.</li>
</ul>
<p><strong>Note:</strong>&nbsp;Donations raised and received by the Boomer Esiason Foundation cannot be refunded, regardless of cancellation date.</p>
<p><strong>Application, Sponsor Sheet and Payment Form</strong></p>
<p>You may download the New York City Half-Marathon charity application, a sponsor sheet and a credit card payment form using the links below:</p>
<p><a href="http://esiason.org/images/docs/2012NYCHalf-Marathon_Application.pdf" target="_blank">NYC Half-Marathon Charity Application</a></p>
<p><a href="http://esiason.org/images/docs/teamboomer_sponsorsheet.pdf" target="_blank">Sponsor Sheet</a></p>
<p><a href="http://esiason.org/images/docs/teamboomer_creditcardsheet.pdf" target="_blank">Credit Card Payment Form</a></p>
<hr />
<p><strong>Questions?</strong></p>
<p>Please call Team Boomer at 646-292-7942 for information and support.</p>

Originally posted in Cystic Fibrosis - Adults

<p>I don't post much, but read the forum quite regularly. &nbsp;We just had our first hospital admission and are currently finishing up home IV's with a picc line. &nbsp;Because of the information I have read on this forum, I think I was much more prepared for this than I otherwise would have been.</p>
<p>&nbsp;</p>
<p>It certainly has not been a smooth experience by any means. &nbsp;I think we have experienced more difficulties than usual, but because I had already read on here of some of the problems and solutions we are making it through ok.</p>
<p>&nbsp;</p>
<p>BTW, my daughter is doing great. &nbsp;Her lung function had been going down slowly the past 6 months. &nbsp;Her high of 116 FEV1 had gone down to 102 FEV1 in December. &nbsp;A round of orals brought her FEV1 up to 108 right before Christmas (if they didn't go up she would have been admitted then.) &nbsp;She caught a cold right after Christmas and at her follow up appt earlier this month her FEV1 had gone back down. &nbsp;Lower FEV1 in addition to changes in her xrays meant getting her first IV's.</p>
<p>&nbsp;</p>
<p>We go back this Thursday for xrays and PFTs to see if she is ready to get the PICC line out.</p>
<p>&nbsp;</p>
<p>Just wanted to say thank you for sharing all of your experiences. &nbsp;We are probably not the only family that benefits from hearing from others that are further along the road than we are.</p>

Originally posted in Cystic Fibrosis - Adults

<p>I looked back at old post to see if I could get my questions answered but none seemed to work.</p>
<p>Has anyone else gone through this??&nbsp;</p>
<p>Do you just feel like crap everyday and is it worth going thru the 18 months of treatment?</p>
<p>I have spent about the past year in and out of the hospital every month to every other month because I have just felt so sick that I knew I needed IV's, finally I cultured MAC. &nbsp;I have had it before but it didn't grow as fast as they would have liked to start treatment right away but now I am at that point where I'll do anything just to fix it because I hate being sick.</p>
<p>Other then the symptoms I found online ( fevers, chills, night sweats, fatigue) anyone else experience anything else?? &nbsp;I am always cold, seem to always have a fever, constantly tired and have aches and pains everywhere. &nbsp;My body feels like a 90 year old women and I feel like sleeping all day, which makes work and school very hard. &nbsp;My social life is non existant anymore because I always feel to sick to go out. &nbsp;</p>
<p>Anyone else experience things like this??</p>