Originally posted in Fibrosis News

The Cystic Fibrosis Foundation has an additional $40,000, after a presentation of a check by the Battle Against Cystic Fibrosis.

Originally posted in Cystic Fibrosis - Adults

<p>Hi guys,</p>
<p>I don't post here too often but I check the site daily and find everything you guys say to be valuable so I just want to explain my situation to who ever will listen..</p>
<p>The last year and a half of my life has been extremely difficult health wise for me. I went from having a mid 70's fev1 senior year of high school and now I'm lucky to see 49% after a round of IV's. I have no clue what's causing my drop in functions. My last dr. appointment about 2 weeks ago my fev1 was down to 34% and I knew it wasn't going to be good before I even did the pft. But the most frustrating part was that I was only off IV's for 2 weeks before my decline. I just can't seem to get any long term relief. Since that last dr. appt. I've been on oral bactrim ds and cipro trying to kick a possible new infection. My compliance with treatments has always been above average doing my vest and nebs religiously and even cpt added 3x a week. I have to admit that I may have an anxiety/depression component also but I am undiagnosed and haven't even mentioned it to my docs. I'm living in constant fear of just one day getting too sick to recover. Right now I only culture PA but have cultured MRSA before. I've been reading about MAC and the symptoms people describe are somewhat similar to mine over the last year but then again it could be that anxiety/depression component and I also don't know if my doc has ever even tested for MAC. I see the doc again tomorrow and I guess he'll tell me if I need IV's again or not. I also had hemoptysis this morning about 3-4 tablespoons despite being on 2 oral abx. Its just so frustrating seeing no benefits after all the hard work I put in…</p>

Originally posted in Cystic Fibrosis - Adults

<p>I was taking colisten and thought it was why I was so dizzy but I have not taking it for a while and am getting dizzy should i start with oxgen levels? if any one can give me a direction or feed back I would be grateful thanks so much</p>

Originally posted in Cystic Fibrosis - Adults

<p>So I had a small pneumothorax in mid December, which was accompanied by subcutaneous ephysema (air bubbles in tissue).</p>
<p>Anyways was just wondering if anyone else has experienced one? I've read some stats on people with CF having them and they really freaked me out. I've also read things like avoiding weight lifting and running which I have been avoiding (just starting running on treadmill again) but I'm afraid of it happening again.</p>
<p>Can you tell me your experience with them?</p>

Originally posted in Cystic Fibrosis - Adults

<p>… I am a 26 years old woman now and got CF since I was 3 months old.</p>
<p>So if anyone wants to know something about me , or needs help or some advice. PLEASE, dont hesitate contactin me. There are so many parents here who need some Info or stuff. Would love to give my knowledge/experience further to other ppl.</p>
<p><a href="mailto:thejokerd@gmx.at">thejokerd@gmx.at</a></p>
<p>greez from Austria, D.!!</p>

Originally posted in Cystic Fibrosis - Adults

<p>Dear CF Community,</p>
<p>My name is Mark and I'm a 27 year old CF patient. &nbsp;I'm working on my Master of Divinity and I'm writing a book about chronic disease and its psychological/emotional effects. &nbsp;I'd like to interview some other CF patients and talk about coming to terms with our disease. &nbsp;Or not coming to terms, whatever the case may be. &nbsp;I'm open to any kind of emotion that is experienced. &nbsp;This is partially me trying to understand how others have dealt with their diseases, and partially just plain curiosity as I have never met anyone else with CF. &nbsp;I would like to interview people on Skype, if possible, because I want to be able to see your face (it helps when I'm describing things later). &nbsp;If you are interested, either post in reply to this or send me a private message. &nbsp;I'd like to interview about 3-5 people who are between 30-60 years old. &nbsp;Thanks so much. &nbsp;Any help would be greatly appreciated.&nbsp;</p>

Originally posted in Cystic Fibrosis - Adults

<p>Since being aware of CFrD and treating with insulin, I've had two pulmonary exacerbations since October 2010 for which I've been treated with tobramycin and ceftazidime via PICC and homecare.</p>
<p>&nbsp;</p>
<p>After about 5 to 7 days of treatment, my insulin needs are altered dramatically. &nbsp;I must nearly halve my basal rate and almost double my I:C rate.</p>
<p>&nbsp;</p>
<p>I've attempted to google for this phenomenom, but with no success.</p>
<p>&nbsp;</p>
<p>Does anyone else experience this?</p>
<p>&nbsp;</p>
<p>If so, what does this happen?</p>