Originally posted in Cystic Fibrosis - Adults

<p>Now there are several threads out there that touch on this issue but I felt it would be best to to start new one posing a few simple questions for those to answer.&nbsp;</p>
<p>1. Have you had your joint & muscle pain diagnosed? If so, how?</p>
<p>2. How do you treat your pain?</p>
<p>3. Is there anything that makes your pain worse?</p>
<p>4. How long has this been a problem for you?</p>
<p>5. Do you feel your pain could be related to CF and or a treatment regime in some way?</p>
<p>&nbsp;</p>
<p>I ask these questions to see if there is anything in common we as adult CF patients share that point out a correlation to CF and chronic joint and muscle pain. With the lack of research and knowledge on this issue in the CF medical community, I feel it is up to those dealing with this to come together and speak up.&nbsp;</p>
<p>If anyone can relate to this or has something else to share on the issue, PLEASE respond!</p>
<p>Thanks,</p>
<p>&nbsp;Abnormal</p>
<p>36w/CF&nbsp;</p>
<p>&nbsp;&nbsp;</p>

Originally posted in Cystic Fibrosis - Adults

<p>If you have private insurance (with a deductible) AND medicare part D, do you notice that medicare ends up picking up most of the deductible?</p>

Originally posted in Cystic Fibrosis - Adults

<p>I am wondering after a child is diagnosed with CF did any of the parents then find out that they too had CF.&nbsp; I think I have read at least one story on the forum like this.&nbsp; I have one child with G542X and one child with a 5T variant.&nbsp; After reading the carriers with symptoms posting recently I thought that could definately explain my symptoms.&nbsp; Then it hit me that a Cf mutation and the 5T variant together causes mild CF and if I passed both of these to my children rather than my husband having one and me having one of these to pass on then that could explain my symptoms&nbsp;too.&nbsp;</p>
<p>So if you were tested who requested the test?&nbsp; Primary care doctor?&nbsp; ENT?&nbsp; Pulmonologist?&nbsp;</p>
<p>Who recommended the testing if you as the parent were tested?</p>
<p>Thanks for any advice.&nbsp; I am trying to get myself healthier so I have less illnesses and thus germs to pass on to my children.</p>

Originally posted in Cystic Fibrosis - Adults

<p>I am wondering after a child is diagnosed with CF did any of the parents then find out that they too had CF.&nbsp; I think I have read at least one story on the forum like this.&nbsp; I have one child with G542X and one child with a 5T variant.&nbsp; After reading the carriers with symptoms posting recently I thought that could definately explain my symptoms.&nbsp; Then it hit me that a Cf mutation and the 5T variant together causes mild CF and if I passed both of these to my children rather than my husband having one and me having one of these to pass on then that could explain my symptoms&nbsp;too.&nbsp;</p>
<p>So if you were tested who requested the test?&nbsp; Primary care doctor?&nbsp; ENT?&nbsp; Pulmonologist?&nbsp;</p>
<p>Who recommended the testing if you as the parent were tested?</p>
<p>Thanks for any advice.&nbsp; I am trying to get myself healthier so I have less illnesses and thus germs to pass on to my children.</p>