Parents of CF child
Originally posted in Cystic Fibrosis - Adults
<p>I am wondering after a child is diagnosed with CF did any of the parents then find out that they too had CF. I think I have read at least one story on the forum like this. I have one child with G542X and one child with a 5T variant. After reading the carriers with symptoms posting recently I thought that could definately explain my symptoms. Then it hit me that a Cf mutation and the 5T variant together causes mild CF and if I passed both of these to my children rather than my husband having one and me having one of these to pass on then that could explain my symptoms too. </p>
<p>So if you were tested who requested the test? Primary care doctor? ENT? Pulmonologist? </p>
<p>Who recommended the testing if you as the parent were tested?</p>
<p>Thanks for any advice. I am trying to get myself healthier so I have less illnesses and thus germs to pass on to my children.</p>
No Comments »
RSS feed for comments on this post. TrackBack URL
by Raelene
