Jun
23
2009
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Miracle of the drug that mends your faulty genes

Christine Falleti has spent much of her life combating the crippling effects of cystic fibrosis .


Written by fibrosis news in: Cystic Fibrosis | Tags: ,

Jun
22
2009
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Family raising awareness about cystic fibrosis

As 10-month-old Colin DePriest catches a cat nap in his car seat, he looks the picture of health.


Written by fibrosis news in: Cystic Fibrosis | Tags: ,

Jun
22
2009
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Carstar going for world record

No sign of rain for this yeara s charity car wash. Joe Paladino, assistant manager of Carstar Collision Centre, was helping wash some cars with volunteers for the Carstar Soaps it up fundraising event on Saturday.


Written by fibrosis news in: Cystic Fibrosis | Tags: ,

Jun
21
2009
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Reconsider hospital layoffs

On Thursday, two administrative personnel at University Hospitals pulled two pediatric nurse practitioners from patient care responsibilities to tell them that the hospital would no longer be funding their positions.


Written by fibrosis news in: Cystic Fibrosis | Tags: ,

Jun
20
2009
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DBS to hold 6th Annual Cystic Fibrosis Poker Run & Pig Roast

Dartmouth Building Supply’s Cystic Fibrosis Poker Run and Pig Roast is a perfect example of how nothing brings people together like a good time for a great cause.


Written by fibrosis news in: Cystic Fibrosis | Tags: ,

Jun
18
2009
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Fundraiser sets sights on world car wash record

With a pile of wet suds and some dirty cars, a collision repair shop hopes to set a Guinness World Record and help find a cure for cystic fibrosis.


Written by fibrosis news in: Cystic Fibrosis | Tags: ,

Jun
16
2009
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New Legislation Seeks To Boost Participation In Clinical Trials For Rare Diseases

New legislation introduced would allow patients with rare diseases to participate in clinical drug studies without losing their eligibility for government healthcare coverage.


Written by fibrosis news in: Cystic Fibrosis | Tags: ,

Jun
16
2009
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Macclenny teen sings about living with cystic fibrosis

Having been diagnosed with cystic fibrosis when he was less than a year old, 19-year-old Alex Colbert has lived for years with an awareness that life is fleeting.


Written by fibrosis news in: Cystic Fibrosis | Tags: ,

Jun
14
2009
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Walking for a cure

About 150 people from across the state came to Laurel Saturday to help local Cystic Fibrosis Walk organizers surpass the $16,000 raised at last year’s event.


Written by fibrosis news in: Cystic Fibrosis | Tags: ,

Jun
13
2009
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Thomson Manor raises money for CF

Approximately 30 residents, as well as associates, friends and family members, gathered in the dining room of Thomson Manor Health Care Center last Thursday morning for a kick-off celebration of the home’s second Cystic Fibrosis fundraiser.


Written by fibrosis news in: Cystic Fibrosis | Tags: ,

Jun
11
2009
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Patient Voices: The Voices of Cystic Fibrosis

Jennifer S. Altman, Peter DaSilva, Ann Johansson, Jeffrey Sauger and Brendan Smialowski for The New York Times.


Written by fibrosis news in: Cystic Fibrosis | Tags: ,

Jun
11
2009
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Cystic Fibrosis Knowledge Centre Launched on EPG Online Website for Doctors

EPG Health Media, specialists in e-communication solutions and digital publishing for the health sector, today announced the launch of a new interactive cystic fibrosis knowledge centre on www.epgonline.org, its web-based medical education resource for Healthcare Professionals .


Written by fibrosis news in: Cystic Fibrosis | Tags: ,

Jun
08
2009
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Cystic fibrosis symptoms, diagnosis and treatment

What is cystic fibrosis? Cystic fibrosis is an inherited chronic disease. In CF, a defective gene affects how sodium moves in and out of cells, especially cells that line the lungs and pancreas.


Written by fibrosis news in: Cystic Fibrosis | Tags: ,

Jun
07
2009
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'Break-a-thon' raises funds for Cystic Fibrosis Foundation

Mary Jo Feldkamp and her son, Andrew, 15, practice defensive moves inside Saline ATA Martial Arts during a recent “break-a-thon” to benefit the Cystic Fibrosis Foundation.


Written by fibrosis news in: Cystic Fibrosis | Tags: ,

Jun
01
2009
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Weekend walk helps cystic fibrosis battle

Every day Brynn Nikirk takes pills and endures two sessions of physiotherapy to clear her lungs.


Written by fibrosis news in: Cystic Fibrosis | Tags: ,

May
30
2009
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First FDA-Approved Pancrelipase Product May Mark New Era for Providers, Patients

FDA’s recent approval of a reformulated version of Solvay Pharmaceutical Inc.’s delayed-release pancrelipase product, Creon, gives pharmacists who are active in the cystic fibrosis community something newa ‘a pancreatic enzyme product that has passed regulatory muster.


Written by fibrosis news in: Cystic Fibrosis | Tags: ,

May
29
2009
--

Manheim Twp. teachers shave heads for fundraise…

“Sheer generosity” – and a lot of sheared hair – highlighted “Operation Baldy” on Tuesday at Manheim Township High School.


Written by fibrosis news in: Cystic Fibrosis | Tags: ,

May
28
2009
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Great Strides Walk at RRU

For most people, walking three kilometres isn’t a monumental challenge, but for a child with cystic fibrosis it’s a different story.


Written by fibrosis news in: Cystic Fibrosis | Tags: ,

May
27
2009
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Vertex Pharmaceuticals Initiates Phase 3 Registration Program for…

The VX-770 registration program will consist of three clinical trials, including a primary 48-week Phase 3 trial that is currently open to enrollment of patients aged 12 years and older who carry the G551D mutation on at least one allele.


Written by fibrosis news in: Cystic Fibrosis | Tags: ,

May
26
2009
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Play to benefit Cystic Fibrosis Foundation, Simi girl

Photo courtesy of Rachel Hoolihan Kyra Hoolihan will be the guest speaker on opening night of “John Lennon and Me,” about a girl with cystic fibrosis.


Written by fibrosis news in: Cystic Fibrosis | Tags: ,

May
26
2009
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Make CF mean 'Cure Found'

They’ll be joining together on Sunday yet again to bring attention to and to raise money for a cause they all believe in.


Written by fibrosis news in: Cystic Fibrosis | Tags: ,

May
26
2009
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American Chopper helps fundraise

Alberta Cycle Motorsports and Orange County Choppers team up to raise money for cystic fibrosis research Posted 2 hours ago A 10 minute drive out of Sherwood Park, Alberta Cycle Motorsports will be hosting multiple fundraisers on May 30, between June 5 and 7 and again on June 20 for the Canadian Cystic Fibrosis Foundation.


Written by fibrosis news in: Cystic Fibrosis | Tags: ,

May
25
2009
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Great Strides set for Sunday, May 31

Join Sylvana Denroche and the Campbell River Chapter of the Canadian Cystic Fibrosis Foundation at the annual Great Strides walk on Sunday, May 31 and help fight cystic fibrosis.


Written by fibrosis news in: Cystic Fibrosis | Tags: ,

May
24
2009
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Families have fun to fight disease

Tyrese Patterson, 10, climbed into a bumper car and took off, slamming into other cars in the track at Krazy City in the Poughkeepsie Galleria.


Written by fibrosis news in: Cystic Fibrosis | Tags: ,

May
23
2009
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Growing towards a cure

Melanie Riedel surveyed her front lawn Friday with its hundreds of colourful annuals in hanging and potted planters.


Written by fibrosis news in: Cystic Fibrosis | Tags: ,

May
21
2009
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Taking a deep breath

“There’s no point in focusing on the negative,” says Alison Wilson, recent double lung transplant recipient.


Written by fibrosis news in: Cystic Fibrosis | Tags: ,

May
19
2009
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Superstrider Sylvana walks for a cure for CF

Join Sylvana Denroche and the Campbell River Chapter of the Canadian Cystic Fibrosis Foundation at the annual Great Strides walk on Sunday, May 31 and help fight cystic fibrosis.


Written by fibrosis news in: Cystic Fibrosis | Tags: ,

May
18
2009
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a Great Stridesa brings in $54,271 for cystic fibrosis research

Area families affected by cystic fibrosis took “Great Strides” Sunday afternoon, raising a record $54,271 in their endeavor to find a cure.


Written by fibrosis news in: Cystic Fibrosis | Tags: ,

May
17
2009
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Cystic Fibrosis Foundation plans Great Strides Walk

It’s a war against disease, fought by mothers and small biotech companies. But one by one, they’re making huge steps.


Written by fibrosis news in: Cystic Fibrosis | Tags: ,

May
16
2009
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Walking for a cause

Tamara Finch hears there could be a cure for cystic fibrosis in 10 years. Her twin granddaughters who suffer from the disease will be 14.


Written by fibrosis news in: Cystic Fibrosis | Tags: ,

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